The European Commission, Member States and Associated Countries have joined forces in a new European Partnership on Rare Diseases (ERDERA). Launched under Horizon Europe, ERDERA’s aim is to transform the landscape of rare disease research across the continent and deliver significant health benefits to the estimated over 30 million people in Europe affected by rare diseases through improved prevention, diagnosis, and treatment.
With nearly 180 partners from 37 countries, a 7-year duration and a total estimated budget of €380 million – of which approximately 150 will come from the European Union via Horizon Europe and the rest from EU Member States, Associated Countries and public and private partners – ERDERA is the largest co-funded partnership in the field of rare disease research and innovation.
This partnership will unite these entities and the broader research community to advance a shared vision outlined in the Strategic Research and Innovation Agenda (SRIA) of ERDERA. It aims to address unmet medical needs and enhance the coordination of European and national research programmes.
To align with the broader EU strategy on rare diseases research, ERDERA will host a launch event on 28 October, featuring contributions from representatives of the European Commission, Ministries of Health and Research, the ERDERA management and patient organisations.